Who Are We
But I Fly Innovations is a 501 (c)(3) non-profit organization dedicated to helping society overcome rare diseases—especially those that are least known and often overlooked. Our mission is to raise widespread global awareness and work toward effective solutions that support and treat patients in need.
We are a passionate community of educators, medical professionals, rare disease patients, and caregivers united by a shared commitment to meaningful change. By partnering with like-minded organizations, we strive to create groundbreaking, lasting impact in this challenging field.
Together, we believe awareness leads to understanding, understanding leads to action, and action leads to hope.
Our Mission and Vision
Mission
To empower rare disease patients and families by advocating for better care, advancing research, providing education, and fostering global collaboration to improve quality of life and access to treatment.
Vision
A world where every individual affected by a rare disease has access to timely diagnosis, effective treatment, supportive care, and the opportunity to thrive, supported by a strong global community of research, advocacy, and education.
Our Core Values
Compassion
We prioritize empathy and support for patients, families, and caregivers in every action we take
Advocacy
We actively champion policies, research, and awareness initiatives that improve lives
Collaboration
We foster partnerships locally and globally, uniting stakeholders for greater impact
Innovation
We embrace new ideas, research breakthroughs, and creative approaches to solve challenges in rare disease care
Education
We are committed to empowering communities with knowledge, training, and resources
Integrity
We operate transparently, ethically, and responsibly in all aspects of our work